Are emails and questionnaire responses kept confidential?

Yes, completely. Your name will NOT be written on the baseline questionnaire and your answers to it will NOT be seen by the doctors and nurses in the clinic. Your completed questionnaire can be placed in a sealed envelope which will not be opened by the clinic staff.

Our system automatically generates each email which is then sent to you individually. This means there is no risk of unintentionally copying other participants’ names or contact details into the email header.

The online questionnaires will be made available on a secure website which can only be accessed using a link sent to your email address. The website questions will not ask you to enter any identifying personal details such as name, address or date of birth. Your answers to the online questionnaires will be stored in a confidential and secure manner.